Nailed It

I have the privilege of hanging out with my little bubby all week, just me and him. Since I have him here, I thought what better way to intro Zach than him giving the basics about himself.

"I have dystonia. I have muscles in my body that is not working really well, and eyes that aren't working really well, and a brain that isn't working really well. My brain has a thing called agenesis corpus callosum. It means my brain isn't functioning. I only have part of my brain. I have had a lot of friends die. It's hard for me. I think about them a lot. But when I get sad, I knock boxes down and it makes me feel better. My aniexty makes me do things I don't want to do. But I have learned to be flexible. If people want to do things for me, like give me picture books, or racecars, or business cards, and come see me it makes me happy. I used to drink energy drinks but they made me worked up, so I don't drink them anymore. I am passionate about fashion, when I got to college I want to pursue my dreams as a fashion empire. I love music, I want to be a music producer for Eminem, Justin Beiber, and all of them. I like giving people gifts. I would like to give people money for their kids education and computers. I don't like guns. I like my sister because she used to be a cheerleader, and she used to have anxiety but not anymore (not true). Dad was a cancer survivor, and so was mom (all true). They almost died. If they died I would have missed them and be sad. I will love them dearly. Can I go in my room now?" 

I have a ton of Zach stories in my back pocket that make me laugh and smile but Zach has a lot he has gone through in life that he doesn't get to process like most of us do. It is true, he has had a lot of his friends and family die through the years, but because of his anxiety, hasn't been able to say his final goodbyes. He still brings these loved ones up as if it just happened and reminds us of their love and grace in their lifetime and the eternal love God has for them. Though he has experienced a lot of loss, he has also met a lot of awesome people as well. 

His list of disabilities is extensive, but he gets excited because each of these things makes him unique. He has a bunch of passions that change every day...I have never heard about this passion about fashion, but I am a first hand witness of his love for people and God. This is just the first entry of many to come.

Needless to say it is miracle that he is alive, thriving, and loving all that enter his life. 

Make sure to check out Thursdays post, focusing on the question that followed me most of my life...what will happen to Zach? 

Cheers and love from me and Zach!

Sam Jo.